Southern Arizona Celiac Support Group Home

Welcome to the Southern Arizona Celiac Support Group

This is the official web site of the Southern Arizona Celiac Support Group, CSA/USA Chapter 15. We are dedicated to assisting Southern Arizona residents and visitors with celiac disease and dermatitis herpetiformis, as well as their family and friends.

Our Objectives

Support SACS
  • Educating newly diagnosed patients with CD/DH on how to switch to a gluten-free (GF) diet: i.e., no wheat, barley, oats or rye or other grains containing harmful gluten.
  • Aiding members in self-education by assisting in their search for information, finding hidden sources of gluten, and determining safe sources of food.
  • Alerting members to recent research concerning CD.
  • Educating the medical community about recent research that indicates that CD is drastically under-diagnosed in the US because it actually occurs in about 1 out of 133 people instead of the one in five thousand that are actually diagnosed.

News and Events

For a full schedule of support group events please see our calendar.

Potluck May 31st

Want to meet other members of our Celiac Support Group, learn how others cope with Celiac Disease and enjoy good food and a Tucson May evening with friends? Join us on May 31st for a potluck on the patio.

Please bring something to cook on the grill for yourself and your family, plus a side dish to share with others. Don‘t forget to attach the list of ingredients for your dish to avoid causing allergic reactions in others. Water and soft drinks will be provided.

The party will start at 5 p.m. For the location please contact corene-robert@comcast.net, (520) 577-6930.

Gluten-Free Bread Baking Classes

Learn how to make good healthy gluten-free bread by doing it yourself under supervision. After the class we have lunch using the fresh baked bread. Classes are on going and scheduled when enought people request one. Most have been on a weekday morning. Contact Virginia via email rmorgan777@cox.net or call 520 888-5905. A donation is requested to cover expenses. The next class is on pie making on November 1st.

Your Support Group is Represented on Bear Essentail News

One of our younger members, Ciara Pebley, presented a report "What Does GF Mean? It Means Gluten Free. It Also Means Good Food!" on KVOA Channel 4's Bear Essential News for Kids.


We WANT you!

Support your support group. SACS is as good as you, our members make it.

Celiac Disease Survey

If you have been diagnosed with celiac disease or gluten intolerance you probably have a story about your experiences. Please share it with us by taking our survey.

Symptom Checklist

With the kind permission of Dr. Peter H.R. Green we are able to reproduce the symptoms checklist from his book Celiac Disease—A Hidden Epidemic. Use it to see if you should talk to your doctor about testing for celiac disease. We've also attached a diagram showing the steps to arrive at a diagnosis. Note that not every doctor will follow exactly this sequence, but you should be insistent on following up with all tests needed to establish for certain if you do or don't have celiac disease.

GoodSearch will donate to the Celiac Sprue Association

Want to donate to our parent organization (CSA) every time you search the Web? Well, you can by using GoodSearch and setting up CSA as the charity you want to support. Just go to http://www.goodsearch.com/ and enter "celiac sprue association" in the "WHO DO YOU WANT TO GOODSEARCH FOR" box and click the "Verify" button. You should see "Celiac Sprue Association USA - CSA (Omaha, NE)" appear and you're good to go. There's a link (http://www.goodsearch.com/Toolbars.aspx) with instructions on how to add it as a search option for the search box in Internet Explorer, Firefox and Google Chrome. You can even download a toolbar for Internet Explorer.

A Reminder from Your Support Group

We want to remind everyone with celiac disease or on a gluten-free diet that ALL types of wheat contain gluten at levels harmful to anyone who is sensitive to it. This includes: Bulgur, common or bread wheat, Durum, Einkorn, Emmer, Kamut, Semolina and Spelt and any other type of wheat (any member of the genus Triticum). Be wary of any claims to the contrary.

Our parent organization, the Celiac Sprue Association, has a web page outlining the different grains and their gluten-free status.

Gluten-Free School Lunches

The diet.com blog recently posted an article on school lunchs and making sure they are gluten free. The include suggestions on how to ensure that your child receives gluten-free meals at school. There's also a good article from the National Foundation for Celiac Awareness on gluten-free lunch guidelines and how to navigate the requirements of your school.

Tucson Cel-Kids (formerly R.O.C.K. Tucson Chapter)

Cel-Kids - For assistance with a newly diagnosed child or just to connect with families that have celiac kids, contact Cel-Kids Chair, elizabeth@sunlightwellness.net.

Collecting Ideas on a living facility with a gluten free kitchen

Suppose you could no longer live independently, had no relative, friend, or group able to share housing, food preparation, etc.
Suppose there were a facility featuring a gluten-free kitchen. that was affordable to you, had room/apartment that would accommodate you where the staff were knowledgeable about GF food prep.

Suppose there were *NO* facility featuring a gluten-free kitchen available to you.

Would you like to add your name(s) to a list of others who have expressed interest in locating or creating such a facility? If so, contact Pat Hirsch at (520) 971-9595, patriciahirsch1@aol.com or Phoenix Wheeler at (520) 751-2332, fenx23@cox.net.

Contact Us

Your comments and requests for information are welcome. Contact us by telephone, email or online form.

To join or renew your membership, register online (Pay by credit/debit card or PayPal account) or download and print the membership form in PDF format.

Celiac Disease Newsfeed

Celiac disease - Google News

Brain 'Stones' Found In Man With Celiac Disease - Huffington Post
Sat, 19 Apr 2014 15:52:32 GMT

Information-Analytic Agency NEWS.am

Brain 'Stones' Found In Man With Celiac Disease
Huffington Post
Lab tests showed that although the fluid circulating in the man's brain was normal, it had higher levels of the antibodies linked to celiac disease, according to the report published today (April 16) in the New England Journal of Medicine. [14 Oddest ...
In Brazil man found with brain stonesInformation-Analytic Agency NEWS.am

all 3 news articles »
Q&A with Celiac Expert Dr. Alessio Fasano - Allergic Living
Wed, 16 Apr 2014 13:03:47 GMT

Allergic Living

Q&A with Celiac Expert Dr. Alessio Fasano
Allergic Living
Dr. Fasano is a world-renowned celiac expert and director of the Center for Celiac Research & Treatment at Massachusetts General Hospital for Children. He explores topics from the myths being spread about celiac disease to the search for markers of ...

and more »
Protective molecule may lead to new therapies for celiac disease - Fox News
Tue, 01 Apr 2014 14:06:45 GMT

Voice of America

Protective molecule may lead to new therapies for celiac disease
Fox News
Researchers have discovered a key molecule that may someday help treat patients with celiac disease, an immune condition triggered by gluten consumption. New research from the Farncombe Family Digestive Health Research Institute at McMaster ...
Protein May Help People with Celiac DiseaseVoice of America
Celiac Disease Treatment? Researchers Identify Molecule That Protects ...Medical Daily
Gut Molecule May Help Cure Celiac DiseaseCounsel & Heal
News-Medical.net -CBC.ca -Globalnews.ca
all 13 news articles »
Research Shows Link Between NSAID Use and Gut Disease - Daily Beast
Mon, 21 Apr 2014 09:59:58 GMT

Research Shows Link Between NSAID Use and Gut Disease
Daily Beast
Anyone who suffers from gluten sensitivity, intolerance, or celiac disease knows how troublesome the problem is. Unlike some immediately life-threatening allergies, such as peanut or seafood, gluten allergies don't send their sufferers into ...

Brain 'Stones' Found in Brazilian Man with Celiac Disease (PHOTO) - Headlines & Global News
Fri, 18 Apr 2014 20:53:29 GMT

Headlines & Global News

Brain 'Stones' Found in Brazilian Man with Celiac Disease (PHOTO)
Headlines & Global News
The Brazilian discovered that he suffered from a digestive condition which combined with celiac disease to produce a rare complication of the stones, according to a new report of his case. (See picture here.) Share This Story. Repeated headaches and ...

and more »
Celiac Disease Linked to Increased Risk of Coronary Artery Disease - Healthline
Tue, 01 Apr 2014 18:16:48 GMT

Celiac Disease Linked to Increased Risk of Coronary Artery Disease
Healthline
Celiac disease has already been linked to arrhythmias, or irregular heartbeats, and possible heart failure. Now, a new study has found that people with celiac disease have almost a two-fold increased risk of coronary artery disease (CAD), compared to ...
Raised Heart-Trouble Risk Seen in Celiac PatientsWebMD
People with celiac disease more likely to develop heart troubleOmaha World-Herald
Celiac Disease May Be Linked to Increased CAD RiskMonthly Prescribing Reference

all 10 news articles »

Last modified on April 04 2014.

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