online at WWW.SouthernArizonaCeliacSupport.org
DISCLAIMER: This publication is intended as a general information resource for gluten-intolerant individuals. It is NOT intended for use in diagnosis, treatment, or any other medical application. Please consult your physician for professional medical advice and treatment.
In this Issue
- Gluten Free Food Faire 2010!
- Vendors significant contributors at SACS’ 2010 Potluck
- SACS’ outreach programs
- Chapter 15 Notes
- An explosion of vendors for GFFF
- ANA Positive Rheumatic Conditions
- Mark your calendar
- Map to GFFF
- Late diagnosis harmful to future health
- Angel Food Cake—from scratch
Gluten Free Food Faire 2010!
SACS’ Gluten-Free Food Faire for 2010 is going to be bigger and better than ever. Don’t miss it on Saturday, April 24th from 9 am to 1 pm at the Christ Community Church Gymnasium, 7801 E. Kenyon Dr., (CCC is located on the NW corner of Pantano & Kenyon between 22nd & Broadway. See map on p. 6)
According to Kim Pebley, GFFF Vendor coordinator for 2010, some businesses had to be turned away due to lack of space. A list of vendors who applied to secure their place before all of the vendor spaces were filled is listed on page 3. She has started a waiting list for qualified vendors to be invited to next year’s event. SACS may have to seek a larger venue for the 2011 GFFF.
Besides the vendors, samples and GF products to buy, the GFFF will also offer many other activities. One of the most wonderful opportunities for attendees is the free celiac blood screening brought to us by a donation of 200 blood tests from Prometheus Labs. Walk-in testing may be available if test kits and lab time are available. It is always better to pre-register via using the form available on our website or call any SACS board member to have a registration form sent to you.
Phlebotomists from the Pima Medical Institute will perform the blood draw under the supervision of their instructor and MAB member, Meg Roop, R.N.
SACS Medical Advisory Board will be present to answer your medical questions in one-on-one conver-sations.
The Cel-Kids group will have eegee's, cookies to decorate, a clown, and a balloon artist to keep them busy, so be sure and bring the kids.
There will be ongoing raffles for GF items and donated goods as well as a silent auction. SACS will have copies of Dr. Ford’s book The Gluten Syndrome for sale and DVDs of his presentation at our Nov.7th meeting.
This year SACS is also selling maps indicating GF restaurants in the Tucson area. Restaurant cards will also be available for sale. These cards will help explain how to prepare our meals safely to servers and kitchen staff.
Gene Spesard’s ever-popular informational booth on GF Dining in Tucson will be back, too.
There is no need to bring GF goodies to share. Just come and enjoy sampling the newest and best in GF food and CD health information. Everyone is welcome and it is totally free, but you’ll be sorry if you don’t bring your wallet to buy GF products and other goodies offered.
(Please contact any board member if you are able to help with this event as we need many volunteers.)
Vendors significant contributors at SACS’ 2010 Potluck
SACS February’s 2010 Potluck was bigger and better than ever with more members and more guests attending than in past years and participants also taste-tested GF product provided by various vendors.
HoneyBaked Ham, which is now GF, donated enough ham to serve 50 people. Innocent Indulgence sent GF/CF Brownie Bites and Cheesecake, which were quickly snapped up. Jack and the Bean sent a representative who cooked and served three different flavors of their delicious GF soups. Katz Gluten Free sent cupcakes and challah rolls while Jo-Sef Gluten Free contributed a variety of cookies. Hector Sosa of Boricua Farms Distributors supplied medium and hot salsa for us, and Maya Tea gave apricot herbal tea for everyone. Many of these generous vendors will also be at the GFFF.
More vendor participation and cooperation means more GF products and a better life for all of us.
Member Linda Burton brought two unbelievably delicious made-from-scratch angel food cakes which she served with fresh strawberries and whipped cream. See page 7 so you can make this treat yourself.
The general meeting part of the Potluck included a vote on changing SACS’ Bylaws and the introduction of Kim Pebley as the new Vice-President/Membership Chairperson. Kim urged everyone to get involved in volunteering, especially at the GFFF. Kim is currently the Vendor Coordinator for the 2010 GFFF.
Sue Beveridge, the current VP/Membership Chairperson announced that she is resigning from that position but will remain involved with SACS and helping out from time to time.
Pat Hirsch spoke about the progress she has made in publicizing the 2010 GFFF.
SACS’ OUTREACH PROGRAMS
About 24 dieticians and dietician interns earned Continuing Education (CE) credits from a SACS’ sponsored presentation March 18th at the Tucson Heart Center.
MAB member Nancy Schuller, RD, led the standing-room-only class and discussed celiac disease, gluten intolerance and how they affect the body and mind.
She covered signs and symptoms, silent symptoms, vitamin deficiencies, related auto-immune disorders, available diagnostic blood tests and foods containing gluten and hidden gluten.
Nancy also brought several books such as Recognizing Celiac Disease, Living Gluten Free for Dummies, and others so that the audience could do further research on their own later.
Nancy’s special guests, Cheyenne and McKendra Clark, put a very human face on CD as Cheyenne described her struggles to help her daughter. After a short Q and A session with Cheyenne interacting with the audience, Nancy gave her Power Point presentation.
The Tucson Heart Hospital kitchen served a wide array of all GF snacks fruit, vegetable and cheese trays, cookies, crackers, chips and iced tea.
Cheyenne and McKendra Clark, Kim and Marisa Pebley and Pat Hirsch represented SACS at this event. Your continued membership and volunteer support makes these educational outreach meetings possible.
By Dr. Rodney Ford
GFFF Special Price
(valid only at the GFFF)
Get both for $20!
Chapter 15 Notes
- Check out the April 2010 issue of the Desert Leaf, p. 62, where SACS’ president Cheryl Wilson gives an in-depth interview on CD and promotes our upcoming GFFF. This article has generated many phone calls to SACS.
- NoRTH Restaurant (Skyline Drive) offers Spelt Penne “Wheat Free” as an option on their menu. Spelt is a type of wheat, contains gluten and is not safe for celiacs or anyone with gluten intolerance. Federal law on food labeling for allergens does not apply to restaurants.
- Tapazole tablets, manufactured by King Pharmaceuticals, are no longer gluten free. The company says they may contain wheat.
- Fixodent by Proctor and Gamble is no longer described as being gluten free. According to the manufacturer, while no gluten containing ingredients are used, there is possible cross- contamination from the raw materials.
- CSA/USA: 877.272.4272, 9 a.m. to 4 p.m. Central Time. Their URL is: www.csaCeliacs.org.
- Membership changes? Notify us via the website or call 520.495.4829. Email the website if you wish to be added to or removed from our email notification list.
An explosion of vendors for GFFF
ANA Positive Rheumatic Conditions
CD Autoimmune Comorbidity Series
Tucson Natural Medicine Center
Happy Spring to everyone! Along with the spring weather comes blooming flowers and trees, as well as not so welcomed seasonal allergies. If you’re one of the many with seasonal allergies to local grasses, trees, and desert plants, you are not alone.
I want to first offer some at-home remedies that may give you some relief from the dripping nose, itchy eyes, and scratchy throat.
Allergies to Southwest plants, trees, and grasses are IgE mediated, hyper-sensitivity reactions, just like IgE food allergies. The body releases histamine and heparin from mast cells, a type of white blood cell responsible for the symptoms experienced in seasonal allergies. Conventionally, doctors prescribe anti-histamines such as Zyrtec, Allegra, and Claritin.
The anti-histamine binds to the histamine receptor, thus blocking the ability of histamine to bind to it which otherwise causes allergy symptoms like runny nose, itchy eyes, and sneezing. These anti-histamines work well to control symptoms but do not prevent the mast cells from releasing histamine. Alternatively, allergy sufferers can use diet, nutrients, and herbs to either complement or replace pharmacological treatment. Nutrients such as quercetin and omega-3 essential fatty acids (EFAs) are natural mast cell stabilizers. They prevent the mast cell from breaking open and releasing histamine. Other nutrients and foods that help decrease allergies are vitamin C, vitamin E, vitamin D, zinc, selenium, bioflavonoids, dark-colored berries, onions, garlic, broccoli, bromelain, and pineapple. Like IgE food allergies, environmental allergies can also be assessed by blood tests.
Ask your physician to consider running a Southwest Allergy Panel to assess your IgE antibodies to several southern Arizona plants, trees, and grasses. By the way, the food and nutrient treatments for seasonal allergies are the same treatment for IgE food allergy symptoms!
Allergies are hypersensitivity reactions to foreign particles, whereas autoimmune conditions are situations where the body’s immune system is attacking the body itself, often causing a myriad of signs and symptoms that often confuse physicians and patients. Continuing with the philosophy of "If you have one autoimmune condition, you should check for others," I decided to address Anti-Nuclear Antibody positive rheumatic conditions in this edition.
Remembering that celiac disease (CD) is an autoimmune condition of the small intestines with several gastrointestinal (GI) and non-GI manifes-tations, it is imperative for people with CD to be proactive in their health care and make sure they are screened for comorbid autoimmune conditions, as well as nutrient deficiencies and their sequelae such as iron deficiency and anemia or vitamin D deficiency and osteoporosis
A group of comorbid autoimmune conditions that is associated with CD is the Anti-Nuclear Antibody positive rheumatic conditions. Autoimmune rheumatic conditions are also referred to as connective tissue disorders and include: Systemic Lupus Erythematosus (SLE); Rheumatoid Arthritis (RA); Mixed Connective Tissue Disease (MCTD); Sjogren’s Syndrome; CREST; Reynaud's Syndrome; and Scleroderma. There are also non-connective tissue ANA positive conditions such as Addison’s disease, Hashimoto’s Thyroiditis, Autoimmune Hemolytic Anemia, Multiple Sclerosis (MS), and Type I Diabetes Mellitus. There are also several medications and types of in-fections that may cause a positive ANA test.
Anti-Nuclear Antibodies, commonly referred to as ANAs, are anti-bodies against the nucleus of cells. They are commonly elevated in connective tissue autoimmune diseases. Approximately 5% of the population has elevated ANA titers without visible disease. ANA titers can be checked by your physician through a blood test and is commonly ordered as an “ANA Titer Screen with reflex.”
Reflex testing means if the overall ANA titer is positive, the lab will do further testing to measure specific ANA subunits. Since there are several conditions that are associated with a positive ANA titer, the sub-units may allow your doctor to narrow down or diagnose a specific condition, make a prognosis, and monitor treatment efficacy.
It makes sense for CD patients to be screened every few years for co-morbid autoimmune conditions even if symptoms are not present. It is best to catch increasing titers early in order to prevent irreversible damage. Your primary care provider should be versed in celiac disease, comorbid conditions, management, and nutrition in order to provide you with adequate care as a celiac patient. Celiac disease untreated, mismanaged, or under treated may lead to serious conditions. However, if properly managed through physician-patient education, patient empowerment, and preventive medicine strategies, celiac patients can live healthy, fulfilling lives.
In a future article, I will include a cut-out card of screening tests with Sonora Quest and Lab Corp test codes that you can bring with you to your doctor’s visit. It can be a discussion tool to ask your provider about appropriate screening tests for you.
I hope to see many of you at the wonderful Gluten Free Food Faire on Saturday, April 24th. Please stop by the Medical Advisory Board table to introduce yourselves and say hello. I enjoy meeting as many of you as possible.
Gluten-Free Creations free delivery
Log on to the Gluten-Free Creations website at http://www.glutenfreecreations.com/, click on the Order tab and select your GF goodies. During the check out process, indicate you will be picking up the order at the GFFF on April 24th in the ‘Comments section’ and don’t select any shipping options. Orders may also be placed by calling 602.522.0659 or 602.955.2034.
You can pay for the product with a credit card online, but you will need cash if you elect to pay for your order C.O.D. at the GFFF. Order deadline for this offer is April 19th, so don’t miss it.
LynnRae will be bringing dairy-free Pink Champagne Cupcakes with her to Tucson on April 24th.
Mark your calendar
- April 16: 1-3 p.m., Exec. Board Meeting, Ward 6 City Hall, 3202 E. 1st St, SACS members welcome
- April 24: 5 p.m. Gluten Free Friday Dining, Create Café, 4660 E Camp Lowell Dr
- April 24: 9:00 a.m. - 1:00 p.m. Gluten Free Food Faire, Christ Community Church, 7801 E. Kenyon Drive, (see map online)
- April 28: 1 p.m. Roundtable, Ward 6 City Hall, 3202 E. 1st St
- May 14: noon, Lunch Bunch, Location TBA
- May 26: 1 p.m. Roundtable, Ward 6 City Hall, 3202 E. 1st St
- May 28: 5 pm, Gluten Free Friday Dining, Picazzo’s, 7850 N. Oracle Road,
- June 11: noon, Lunch Bunch, Location TBA
- June 23: 1 p.m. Roundtable, Ward 6 City Hall, 3202 E. 1st St
- June 25: 5 pm, Gluten Free Friday Dining, Opa, 2990 N Campbell Ave
- July 9: noon, Lunch Bunch, Location TBA
- July 23: 5 pm, Gluten Free Friday Dining, Jax Kitchen, 7286 N Oracle Road
Print the form on our web site and send in your membership renewal today.
SACS events and outreach programs mean a better, safer life for every gluten-intolerant individual.
(Want to remain a member but feel paying the fee would be a financial hardship? Please contact SACS’ membership chairperson)
Late diagnosis harmful to future health
When celiac disease is diagnosed in adulthood, mucosal damage might never completely resolve, even on a gluten-free diet, according to an online report in The American Jour-nal of Gastroenterology.
"Celiac disease is a serious inflammatory condition that does not always heal," said senior researcher Dr. Joseph A. Murray from the Mayo Clinic College of Medicine.
Dr. Murray and his colleagues analyzed mucosal recovery and all-cause mortality in 241 adults who had diagnostic and follow-up biopsies. All of the diagnostic biopsies showed some degree of intestinal villous atrophy, and nearly half the patients had total villous atrophy. The median age at diagnosis was 47 years, and all had been following - or attempting to follow - a gluten-free diet since learning of their celiac disease.
Out of 165 patients with first follow-up biopsies within 2 years of diagnosis, only 58 (35%) had mucosal recovery.
For the entire group, the actuarial rate of intestinal healing at 2 years was 34%. At 5 years, 66% of patients had mucosal recovery.
Most patients (82%) had at least some clinical response to the gluten-free diet, but clinical response was not related to mucosal recovery on the first follow-up biopsy. Among the 192 patients with a complete or partial clinical response, 119 (62%) had persistent mucosal damage.
Compliant patients had a recovery rate of 61%, mostly compliant had a recovery rate of 21% and people not following the diet carefully had a recovery rate of 18%. So, yes, even a tiny bit of gluten is bad for you.
Seventeen patients died during the first 10 years of follow-up. Eleven had at least one follow-up biopsy, and all but one still had mucosal damage in the last biopsy before death. Cancer was the most common cause of death in these patients.
The mortality rate was 87% lower with confirmed mucosal recovery versus persistent mucosal damage by gluten. (emphasis added)
Dr. Murray recommended intestinal biopsy "after 1 year of gluten-free diet" and, for patients with persistent mucosal damage even on the diet, "close surveillance, follow-up with diet review, and, if symptoms are present, look for refractory change."
Angel Food Cake—from scratch
By LINDA BURTON
- 1/2 cup cornstarch
- 1/3 cup potato starch
- 3/4 teaspoon guar gum
- 3/4 cup sugar
- 1/2 teaspoon salt
- 1 1/4 cup egg whites (I use the whites of 13 fresh eggs)
- 1 tablespoon water
- 1 teaspoon cream of tartar
- 2 teaspoons GF vanilla
- Additional 1/3 cup sugar
Preheat oven to 350°. In medium-sized bowl, combine cornstarch, potato starch, guar gum, 3/4 cup sugar, and salt. Set aside.
In large mixing bowl, combine egg whites, water, cream of tartar, and vanilla. Mix until frothy. While continuing to beat egg white mixture, slowly beat in the 1/3 cup sugar. Continue beating until stiff peaks are formed.
Fold in flour mixture, making sure no lumps remain. (Lumps make hard little clumps in your cake after it is baked) Pour batter into ungreased angel food cake pan. Press batter down slightly to remove any large air spaces.
Bake 35-40 minutes, until light golden brown. Invert pan over glass bottle.
This cake cools upside down. Once cool, remove from pan.
This recipe is from The Gluten-Free Kitchen cookbook by Roben Ryberg.
Last modified on Thursday, 01-Dec-2016 15:22:50 MST