Celiac Digest

A publication of the Southern Arizona Celiac Support Group (SACS)
online at WWW.SouthernArizonaCeliacSupport.org
Volume 10, Issue 2
April 2011

DISCLAIMER: This publication is intended as a general information resource for gluten-intolerant individuals. It is NOT intended for use in diagnosis, treatment, or any other medical application. Please consult your physician for professional medical advice and treatment.

In this Issue

2011 GLUTEN-FREE FOOD FAIRE NOT TO BE MISSED!

Holiday Inn Palo Verde in Tucson will host the extravaganza this year on Saturday, April 30, after the packed-out facility and parking lot SACS experienced at the 2010 event. The new, larger venue has already made it possible for SACS to provide ample parking and increase the number of vendors participating, which is now up to over 50!

New to the GFFF this year will be "Restaurant Row," the brain-child of GFFF Coordinator, Kim Pebley. Her vision was not only to increase awareness of what is available to us locally, but really to show the restaurateurs just how many of us there are out there and how strong the demand is for GF menu offerings. It‘s never been done on a scale like this in Tucson. Many of your favorites will be there, like Lotus Garden, Tucson Tamale and Picazzo's, but add to that some of the other Tucson Originals like Jonathan‘s Cork, El Charro, La Cocina, and Eclectic Pizza, and you have a wonderfully well-rounded selection of eateries. Not to mention Metropolitan Grill, The Bamboo Club, Melting Pot, Rubio's and Create Café. Local bakers Gluten-Free Magic and Big Skye Bakers will also be there.

In addition to the great group of vendors we have had in the past, we will be adding a few more that we are sure you will like. We don‘t have room to list them all (and we want you to come and see for yourself!).

Our Silent Auction this year will include many brand-new items and will be held on the raised platform in the lobby of the hotel. You will have the opportunity to browse through the items since the sign-in tables will be located right there. The main vendor area will be in the combined ballrooms, as will the blood screening, Cel-Kids and Raffle.

You may have already heard the hype about our FREE blood screening this year. Each qualifying participant in the 2011 screening will receive TWO test results this year—one for TTG and the other for DGP. See Dr Pearson‘s article in this issue (Pg 3) about the importance of this new offering. Be SURE to let your first-degree relatives (over the age of 18!) know that they can receive this screening for FREE. All they have to do is go to our website, download the form, fill it out, SIGN IT, then send it to us. There are a limited number of these FREE screenings available, so please let your family & friends know that they should apply soon!

There are few important things to remember before applying and they are outlined on our GFFF anouncement elsewhere on our website. Both pages of the application must be filled out and it MUST be signed in order for us to process it.

Don‘t miss our book signing table where CD/GF Lecturer & Mentor, Melissa Diane Smith, will be autographing copies of her newest book, as well as others.

Be sure to check out our Dining Out in Tucson table. For sale there will be a map of local GF eateries.

One of the most important things that we offer our GFFF attendees is the opportunity to speak with members of our Medical Advisory Board. They will again be there to answer your questions about CD, DH and GS. Remember to thank them for how they serve us despite their busy schedules.

We hope you ALL will plan now to attend the 2011 GFFF on Saturday, April 30, from 10am-2pm at the Holiday Inn on Palo Verde. Be sure to invite your family, friends, coworkers and, well, everyone!

WELCOME New MAB Member Carmen Palacio

Carmen Palacio

Registered Dietitian, Carmen Palacio, started her journey as an RD 24 years ago after graduating from the UA in May 1987 with a B.S. in Human Nutrition & Dietetics. She completed her internship at Idaho State University in May 1993. She says she practiced as a "traditional RD" in hospital settings until September 2001, when she left her position to manage her son‘s severe autism. She relates that this involved numerous therapies, a home-behavioral program, tube feedings and a specialized feeding program in Virginia. During this time in her life she saw patients in private practice around this rigorous schedule.

It was only natural that her own situation led her to work for years with Special Needs children, particularly those with Autism, who had GI problems, food allergies, and/or food sensitivities. In 2008, she began seeing referrals from Dr. Wataru Tamura, which were mostly adults with GI problems, food allergies, food and/or environmental sensitivities. She continues in private practice to counsel clients who have GI problems, multiple health issues, or those who need help with obesity, diabetes, or high blood pressure management.

As to her own diagnosis, "I did not realize that, I too, was a 'GI patient' until I was researching answers for helping my son. I was originally diagnosed with Celiac Disease, but rediagnosed as Non-Celiac Gluten Intolerant four years later with the gene testing."

Carmen counts herself fortunate to work as a Dietitian where she is able to educate her clients about the GF, as well as other foods they might need to monitor and modify based on health issues. She emphasizes how to follow the "safest" GF diet today. Joining the SACS Medical Advisory Board will allow her to work with even more people who have CD or Gluten Sensitivity (GS).

Carmen explains that she also has a real desire to expand her work with the community at large, specifically restaurants, where she can educate owners and employees about ALL special diets. Carmen views that as 1) how to accomplish, and 2) (most important) how to avoid cross-contamination issues throughout the entire process of making the meal.

Carmen says she has many clients with CD and even more with GS that she sees several times a week. She also has family members on both sides of the spectrum.

Biggest stumbling block to getting diagnosed? Carmen is emphatic in this answer: "A Medical professional‘s current knowledge of CD and that it is not just the textbook symptoms!" She believes that many just don‘t think it‘s food related.

What is the biggest stumbling block to following the diet? "Lack of understanding of the damage that Celiac and Gluten Intolerance can do to the ENTIRE body AND how long it takes to recover, but HOW IMPORTANT it is to remember that along the path of recovery, the body IS HEALING and nutritional status is improving."

tTg + DGP = Best Celiac Screening What’s the Hype all About?

By Dr. Lindsey Pearson, NMD

It‘s April again and that means the Gluten Free Food Faire (GFFF) and the Community Celiac Screening is just around the corner. My parents usually come to visit me in April and make it a sure thing to put the GFFF on their list of things-to-do. I wish they were coming this year so they could experience it in a larger venue, hosting more vendors than ever and offering the first ever FREE Community Celiac Screening with both tTG IgA and DGP IgG testing!

Prometheus Labs is so generous. They granted our request to offer both the tTG IgA and the DGP IgG serum testing. A large thank you to Prometheus! I am so excited for this year‘s celiac screening – the largest in ARIZONA! Now with the DGP testing included, our celiac screening is the most comprehensive FREE community based screening in the country! That is very impressive. When asking Prometheus Labs for both the tTG and DGP testing, I stressed SACS‘ dedication to community education in the diagnosis and management of celiac disease (CD) in our community. This group has been a frontrunner before and is now again for such a high caliber GF Food Faire and celiac screening event.

Hosting a free celiac screening that includes the tTG and DGP is remarkable. It‘s remarkable because it is a comprehensive screening panel being made possible through a grant from Prometheus Labs. The DGP‘s ability to catch those missed by the tTG IgA screening makes it imperative that it is included in every doctor‘s celiac screening panel.

The importance of the combined DGP testing is to catch any patients who may have negative tTG IgA results because either they have an IgA deficiency, or for some other reason don‘t show positive on tTG IgA testing.

With an IgA deficiency, a "false negative" tTG IgA result may occur because there is not enough immunoglobulin (Ig)A around to mount an antibody response. It is also a great new screening tool for children under the age of two, unlike the tTG IgA which is not recommended due to its false negatives in infants and young children.

I recently met with a patient of mine who has always tested negative for the tTG IgA when tested by previous doctors. Her son tested positive for celiac by the tTG IgA and biopsy. Since her son was positive (and even though she tested negative for tTG IgA in the past) I ran my complete celiac panel that included tTG IgA & IgG, total IgA, DPG IgA & IgG, and anti-gliadin IgG & IgA. Her tTG IgA was negative but her DPG IgG was highly elevated. Being mostly gluten free due to her son, she now knows that she needs to adhere to a gluten free diet in order to be healthy. I recommended that she schedules for a biopsy to assess microvilli health. She may or may not have villous atrophy or damage. However, she would not have been able to have a biopsy under her insurance without the testing to support its medical necessity. Now with DGP testing along with the tTG, our screening has greater power to screen our community for celiac disease!

Editors Note: For more information (and indepth technical explanation) of the studies involving TTG & DGP, please visit the web. There are many articles that review the original study (which was published in World Journal of Gastroenterology in July 2010) and you can also read the abstract at http://www.ncbi.nlm.nih.gov/pubmed/20136587. There are also two great articles at livingwithout.com that are based on the same study. Stay informed...get the facts.

With that said, I am looking forward to this year‘s Gluten Free Food Faire and Celiac Screening. I enjoy meeting and talking with members and visitors. This year we are again hosting a Medical Advisory Board (MAB) Question and Answer table at the GFFF. MAB members will be there to answer questions you may have. Please stop by, say hi and introduce yourself. We all enjoy connecting with you. See you at the Gluten Free Food Faire and Community Celiac Screening! Thank you Prometheus Labs!

Dr. Pearson is the head of SACS' Medical Advisory Board and practices integrative internal medicine at LP Internal Medicine located at 899 N. Wilmot Road, Suite D1 in Tucson near St. Joseph’s Hospital 520.302.4033 LPearson@LPInternalMedicine.com

Chapter 15 Notes

Membership changes? Notify us via the website or call 577-6930 (Corene Johnson).

CSA/USA: 877-272-4272 9 a.m. to 4 p.m. Central Time. Go to www.csaCeliacs.org.

SACS GF Mentor Program You can sign up online if you would like a mentor to help you navigate the sometimes confusing world of CD/DH or the GF lifestyle. We will try to match you with someone that lives on your side of town. You can also sign up to BE a mentor (diagnosed 1+yr). Go to our website and click on "Gluten-Free Mentor Program".

SACS Volunteer Needs How Can YOU help?

'Celiacs helping Celiacs' is the motto of CSA/USA our parent organization. We want to help anyone maintaining a GF lifestyle and YOU can be a part of that...

  • Cel-Kids Helper. Do you like children and want to help them enjoy their GF lifestyle to the max? Maybe you have some great ideas for how to include children in our events or create special events for them...we want to hear from you.
  • .Ongoing needs include clean up and/or set up for SACS general meetings or special events. You can volunteer to help for a specific date or any number of events. If you would like to know more or want to sign up right now, please contact our Volunteer Coordinator, Celeste Harvey, at 721-6767 or Email her at lily_celeste@yahoo.com.

SACS in the Community

By Pat Hirsch

A healthy community is achieved through cooperation between individuals which results in greater good for everybody. We don‘t always recognize where we fit into that formula but we do nevertheless. Sometimes our contribution to society is in being needy in some way (which brings out the best in others). Informing our larger community about CD/GF needs actually benefits the entire community, especially this month.

  • Be positive, enthusiastic and optimistic when inviting family, friends and co-workers to the Gluten Free Food Faire coming up on Saturday, April 30.
  • .Print a few of the 8-1/2 x 11 GF Food Faire posters from here: http://www.southernarizonaceliacsupport.org/2011foodfaire/FoodFaire2011-FULL-w-logos-rev.pdf. Then take them to your favorite merchants and service providers: barber, beauty shop, laundromat, club, church, library, butcher, GF baker, candlestick maker; you get the picture. Politely ask them to post it in their window or on their bulletin board. (They‘ll appreciate the extra-nice gesture of bringing your own tape and/or tacks for the bulletin board!)
  • If you‘ve read this newsletter and don‘t like clutter, recycle it meaningfully. Scratch off your name and address and set it with the magazines in the waiting area at your doctor‘s office, local pharmacy, or again at the beauty or barber shop, anywhere where it might be stumbled across. You may never know how much it could help someone else.

Doing these friendly little things empowers us, helps our CD/GF community gain acceptance and strengthens understanding in the wider community. There is no better time than now, just two weeks prior to the GF Food Faire, for us to shine our spotlights on CD/GF!

We are reaping acceptance in the wider community already. Southern Arizona Women’s Chorus has again asked SACS to serve GF goodies at their two spring concert receptions May 7 & 8! This is a good example of how our CD/GF community is building bridges to other parts of the community.

Boston's the Gourmet Pizza, home of the gluten-free pizzas!  Meet Me@Boston's Come walk or run with us every Wednesday at 6pm  It's a Marana thing 5825 W Arizona Pavillions Dr, Tucson 520-572-1555  We also have Redbridge gluten-free beer $2.50

May 7th Cooking Class to Equip Members for June 4th ALL-SACS BBQ

GF Cooking
WHAT:
May 7th GF Cooking Class: 10 Potluck Dishes
WHY:
To learn how to prepare easy, healthy, GF meals
WHEN:
May 7th from 10am-12:30pm
WHERE:
Swan/Sunrise Area Corene Johnson, Hostess
WHO:
Anyone over age 14 (limit of 10 per class)

May 7th cooking class is all about a variety of delicious potluck dishes. The class will prepare ten different recipes that anyone would be proud to take to a party. We are hoping that by preparing such a variety, we can cover food allergies such as no eggs, no dairy, no soy, no night shade vegetables, and, of course, no gluten.

The class will be cooking one appetizer (dates rolled in bacon - sounds strange but are ooh so good), five side dishes (quinoa tabbouleh, carrot/raisin salad, broccoli/bacon salad, carrot/jicama salad, and black quinoa salad), one main dish (white bean and tuna), and three desserts (Texas sheet cake, lemon bars, and banana bread).

Saturday June 4, 5:00 pm, SACS Sunset Potluck & BBQ

Then put all of your potluck dishes to good use at the SACS Sunset Potluck and BBQ on June 4th at the invitation of the So Az Celiac Support Executive Board. Please bring something to cook on the grill for yourself and your family, plus a side dish to share with others. Don‘t forget to attach the list of ingredients for your dish to avoid causing allergic reactions in others. The party will start at 5 p.m. to give our members who do not drive at night plenty of time to arrive and leave before dark. Water and iced tea will be provided. More information will be on our website after the GFFF.

Please plan to bring your family and meet other members of our Celiac Support group. Learn how others cope with Celiac Disease. Enjoy good food and a Tucson June evening with friends before the weather gets too hot. The event will be held at the home of Corene & Robert Johnson.

For more information call Corene Johnson at 577-6930 or email corene-robert@comcast.net

GF Cooking Class:
Saturday May 7, 2011
10:00am to 12:30pm
COST:
$20.00/pp (members)
HOW:
Call Corene Johnson (577-6930) to reserve your space for the fun!

HOW TO GET THE MOST OUT OF YOUR VISIT TO THE 2011 GFFF

Tucson Tamale Company Simpligy, sustain, Celebrate. Gourmet Tamales Everything we sell is 100% Gluten Free! See our entire menu online www.tucsontamalecompany.com.  2545 E. Broadway Tucson, AZ 85716 520-305-476-
  1. Bring your family and friends—it‘s always more fun to share the experience
  2. Bring $$ in case you want to buy some of that yummy GF food you just tasted
  3. Come early and stay late— you don‘t want to miss a minute…(sometimes vendors run out of samples)
  4. Don‘t forget to SIGN IN - we will give you a bag to carry your goodies in (well, a small amount of goodies) and you will be registered for the DOOR PRIZE!
  5. Invite others that you think might benefit from learning more about CD or the GF lifestyle
  6. Make note of where the bathrooms and water stations are located
  7. Visit our Medical Advisory Board Q & A table...just try an‘ stump 'em (but be sure to let others ask questions)
  8. Visit the Silent Auction area and bid on those great items...this is SACS most important fund-raiser
  9. Renew your Membership— it may have lapsed
  10. Buy RAFFLE tickets!!! Bags stuffed with GF goodies
  11. Visit Melissa Diane Smith--perhaps buy her book & get an autograph
  12. See what‘s happening in the Cel-Kids activity area
  13. Renew your subscription (or get a new one) to Living Without Magazine at the membership table
  14. Thank the vendors, SACS volunteers and anyone else you see helping to make this happen—it brightens everyone‘s day (yours too)
Bring Your Friends
Saturday April 30,, 2011
SACS Annual Gllutten--Free Food Faiire
Holiday Inn @ Palo Verde 10am — 2pm
GF Vendors
Restaurant Row
Silent Auction
CD Screening
Save the Date
Saturday June 4th 5::00pm SACS Family Sunset Potluck & BBQ
*See inside for details*

Mark Your Calendar

  • April 22 - 6pm, Fourth Friday Evening Dining @ Mina‘s Thai, RSVP Jerry Heintze 975-7322
  • April 27 - 1pm, Roundtable Forum @ Ward 6 City Hall
  • May 7th - 10:00am, GF Cooking Class*, RSVP Corene 577-6930, corene-robert@comcast.net
SACS Roundtable Fourth Wed each Month (except Nov/Dec)
GF Lunch Bunch Second Friday each Month
GF Dining Out Fourth Friday Evening each Month

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